What The Stuttering Community Can Learn From Rare Disease Advocacy [Part 2]

Deskripsi

This episode is Part 2 of our series “What We Can Learn from the Rare Disease Community.” Last week, we heard from Bobby Glen about navigating the healthcare system as a parent of a child with HNRNPH2. Today, his wife Nicole—who is also a pediatrician—joins us to share how raising a child with a rare disease has shaped the way she practices medicine, approaches patient advocacy, and supports families navigating speech and communication challenges.Event Alerts:Docs on Stuttering – May 8 (Use "PROUD25" at checkout for a free ticket)Docs on Disability – May 15, featuring Marlee Matlin’s Sundance-premiered documentaryPhilly Proud Stutter Gathering – May 19Save The Date: Proud Stutter Annual Gala in San Francisco – October 9 (listeners get 50% off tickets!)And yes, Survivor fans—our recap will be back to cover the season finale, which airs on May 21, 2025! Go Mitch!Support this podcast at — https://redcircle.com/proud-stutter/exclusive-contentAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy